Health and Global Policy Institute (HGPI) launched the website “Japan’s Patient Expert Platform (J-PEP)” on 21 August 2024.

Since its establishment in 2004, HGPI has upheld the mission to realize citizen-centered health policies. We have been engaged in policy advocacy activities based on discussions among multi-stakeholders, including healthcare providers, researchers, business representatives, administrative and legislative officials, and people with lived experience of health conditions. Additionally, we have supported the meaningful involvement of people with lived experience in policy-making process. In recent years, the importance of meaningful involvement has been recognised and practiced widely. However, emerging challenges, such as a shortage of individuals to be involved and limitations in collecting diverse voices of people with lived experience, have been pointed out.

In light of this situation, Meaningful Involvement Promotion Project has aimed to promote meaningful involvement of people with lived experience, considering the current social situations. To achieve that, we have conducted discussions among advisory board members and conducted hearings with a wider range of stakeholders. Based on the insights gained from these previous activities, we have established a free membership website for people with lived experience, named “Japan’s Patient Expert Platform (J-PEP).”

This initial release precedes the full launch scheduled for autumn 2024, providing an overview of J-PEP and allowing for the pre-registration.

To view further details, click here.

Patient and Public Involvement (PPI) Support Project Phase 1 (- July 2024) List of Stakeholders

Advisory Board Member (Titles omitted; in Japanese alphabetical order by last name)

Kyoko Ama (Representative, Children and Healthcare Project; Fellow, HGPI)
Shinsuke Amano (Chair, The Japan Federation of Cancer Patient Groups; CEO, Group Nexus Japan)
Etsuko Aruga (Professor, Department of Palliative Medicine, Teikyo University School of Medicine)
Naomi Sakurai (President, Cancer Solutions Co., Ltd)
Takeshi Shukunobe (President and CEO, PPeCC)
Kazuyuki Suzuki (Senior Lead, Patient Engagement Group, Strategy & Execution, Novartis Pharma K.K.)
Yasuhiro Sensho (CEO, SENSHO-GUMI, Co., Ltd.; Former Director-General, MHLW)
Teppei Maeda (Lawyer, Maeda & Unosawa Law Offices; Representative, Medical Basic Act Community)
Kaori Muto (Professor, Department of Public Policy Studies, Institute of Medical Science, University of Tokyo)
Akira Morita (Representative Director, Next Generation Fundamental Policy Research Institute (NFI))
Ikuko Yamaguchi (Chief Director, Consumer Organization for Medicine and Law (COML))
Risa Yamazaki (Public Affairs Group, External Affairs Department, Chugai Pharmaceutical Co., LTD.)

Project sponsors (in Japanese alphabetical order)

Syneos Health Commercial K.K.
Chugai Pharmaceutical Co., Ltd.
Novartis Pharma K.K.