Health and Global Policy Institute (HGPI) will host a seminar for Japan’s Patient Expert Platform (J-PEP) members. Established on December 1, 2024, J-PEP is a platform for information and exchange that supports the sustainable and meaningful involvement for a diversity of people with lived experience of health concerns and other related parties in the policy-making process.

To learn more about J-PEP, an introductory video and reference materials found here. (Please note that these materials are available in Japanese only.)

The intent of J-PEP Seminars is to create an environment for participatory learning and exchange that transcends the boundaries of various diseases and fields to provide people with lived experience, others affected by health concerns, and citizens who are interested in participating in the policy-making process with opportunities to connect, engage in mutual learning, and share opinions.

Consequently, this J-PEP Seminar will provide a place for people with lived experience of health concerns and who are interested in involvement in the health policy-making process to teach each other and help each other acquire the basic knowledge needed to take part in that process.

For the fourth session, we are pleased to welcome Mr. Hiroki Takeda (Director, PPeCC; Auditor, Japanese Network of People Living with HIV (JaNP+)). Looking back on the history of the patient and lived-experience movement in Japan, Mr. Takeda will speak about where patient and public involvement (PPI) has come from and where it is heading, drawing on his own experiences and activities.

To participate in this seminar, J-PEP membership registration is required.

(Registration is free, but please note that J-PEP is available only in Japanese.)

[How to Register]

1. If you are not yet a member, please register for J-PEP.
2. After completing registration, please log in.
3. Once logged in, please complete your seminar registration here.
   (Available only in Japanese.)

[Event Overview]

• Speaker: Mr. Hiroki Takeda (Director, PPeCC; Auditor, Japanese Network of People Living with HIV (JaNP+))
• Date & Time: Wednesday, September 30, 2026, 19:00-20:00 JST
• Format: Online (Zoom webinar)
• Language: Japanese
• Participation Fee: Free
• Capacity: 500 participants
• Target audience: Participation will be limited to members of J-PEP (people with lived experience of health concerns, their family members and supporters, and citizens)

■ Profile:

Mr. Hiroki Takeda (Director, PPeCC; Auditor, Japanese Network of People Living with HIV (JaNP+))
Mr. Takeda lives with hemophilia A and has other conditions, including HIV, which he contracted through the HIV-tainted blood products scandal, and heart disease. Having his life saved by a patient support organization sparked his interest in patient and public involvement (PPI). He aims to turn the feelings and experiences of people living with illness into value. At PPeCC, he strives for a society where people can say, “It’s okay to have an illness,” and advances PPI and efforts to build a society where everyone can work with ease. Mr. Takeda also serves as a member of the Clinical Trial Review Committee at the Tokyo Institute of Science Hospital, the Medical Ethics Review Committee at Tokyo Medical University, and the Ethics Review Committee at ASrid (NPO). He supports self-management for people living with illness and runs disaster-preparedness seminars for people with intractable diseases. He shares his daily activities and reflections on note: https://note.com/takedahiroki