[Activity Report] The Launch of the Website “Japan’s Patient Expert Platform (J-PEP)” (August 21, 2024)
date : 8/21/2024
Health and Global Policy Institute (HGPI) launched the website “Japan’s Patient Expert Platform (J-PEP)” on 21 August 2024.
Since its establishment in 2004, HGPI has upheld the mission to realize citizen-centered health policies. We have been engaged in policy advocacy activities based on discussions among multi-stakeholders, including healthcare providers, researchers, business representatives, administrative and legislative officials, and people with lived experience of health conditions. Additionally, we have supported the meaningful involvement of people with lived experience in policy-making process. In recent years, the importance of meaningful involvement has been recognised and practiced widely. However, emerging challenges, such as a shortage of individuals to be involved and limitations in collecting diverse voices of people with lived experience, have been pointed out.
In light of this situation, Meaningful Involvement Promotion Project has aimed to promote meaningful involvement of people with lived experience, considering the current social situations. To achieve that, we have conducted discussions among advisory board members and conducted hearings with a wider range of stakeholders. Based on the insights gained from these previous activities, we have established a free membership website for people with lived experience, named “Japan’s Patient Expert Platform (J-PEP).”
This initial release precedes the full launch scheduled for autumn 2024, providing an overview of J-PEP and allowing for the pre-registration.
To view further details, click here.
Patient and Public Involvement (PPI) Support Project Phase 1 (- July 2024) List of Stakeholders
Advisory Board Member (Titles omitted; in Japanese alphabetical order by last name)
Kyoko Ama (Representative, Children and Healthcare Project; Fellow, HGPI)
Shinsuke Amano (Chair, The Japan Federation of Cancer Patient Groups; CEO, Group Nexus Japan)
Etsuko Aruga (Professor, Department of Palliative Medicine, Teikyo University School of Medicine)
Naomi Sakurai (President, Cancer Solutions Co., Ltd)
Takeshi Shukunobe (President and CEO, PPeCC)
Kazuyuki Suzuki (Senior Lead, Patient Engagement Group, Strategy & Execution, Novartis Pharma K.K.)
Yasuhiro Sensho (CEO, SENSHO-GUMI, Co., Ltd.; Former Director-General, MHLW)
Teppei Maeda (Lawyer, Maeda & Unosawa Law Offices; Representative, Medical Basic Act Community)
Kaori Muto (Professor, Department of Public Policy Studies, Institute of Medical Science, University of Tokyo)
Akira Morita (Representative Director, Next Generation Fundamental Policy Research Institute (NFI))
Ikuko Yamaguchi (Chief Director, Consumer Organization for Medicine and Law (COML))
Risa Yamazaki (Public Affairs Group, External Affairs Department, Chugai Pharmaceutical Co., LTD.)
Project sponsors (in Japanese alphabetical order)
Syneos Health Commercial K.K.
Chugai Pharmaceutical Co., Ltd.
Novartis Pharma K.K.
Top Research & Recommendations Posts
- [Research Report] Building a Mental Health Program for Children and Measuring its Effectiveness (June 16, 2022)
- [Survey Report] Survey of Japanese Nursing Professionals Regarding Climate Change and Health (Preliminary Version) (September 11, 2024)
- [Research Report] 2019 Survey on Healthcare in Japan
- [Policy Recommendations] Developing a National Health and Climate Strategy for Japan (June 26, 2024)
- [Announcement] A Turning Point Towards Building Green Healthcare Systems (June 5, 2024)
- [Research Report] The 2023 Public Opinion Survey on Satisfaction in Healthcare in Japan and Healthcare Applications of Generative AI (January 11, 2024)
- [Policy Recommendations] Three Necessary Perspectives for Formulating the Basic Plan for the Promotion of Policies on Dementia: Creating a Society That is Inclusive for All People at All Times (April 1, 2024)
- [Policy Recommendations] Achieving Equity in Multidisciplinary Pain Treatment and Support Systems for Pain Management (March 31, 2023)
- [Announcement] A Significant Step Towards the Building a Green Healthcare System: Support for the Formal Expression of Interest by the Japanese Government Delegation to the ATACH at the Executive Board Meeting of the WHO (February 16, 2024)
- [New Report] Policy Priorities for Super-Ageing Japan: Health Innovation and Economic Growth in the COVID-19 Pandemic Era (February 24, 2021)
Featured Posts
-
2024-09-26
[Registration Open] HGPI Salon Special Edition “The 2024 U.S. Presidential Election’s Impact on Japan’s Healthcare Policies: Future Implications for U.S.-China Relations and U.S.-Japan Cooperation” (October 28, 2024)
-
2024-10-07
[Registration Open] International Dialogue “Fostering Community and Citizen-led Approaches to AMR: Lessons from Antibiotic Smart Sweden” (October 25, 2024)
-
2024-10-07
[Registration Open] Planetary Health Expert Meeting “Building the Future of Healthcare: A Vision for Sustainable and Resilient Health Systems with GGHH” (November 5, 2024)
-
2024-10-09
[Registration Open] HGPI Salon Special Edition “Overcoming Infectious Diseases through Partnership: Focusing on examples of promoting technology transfer of antimicrobial agents” (October 21, 2024)
-
2024-10-09
[Registration Open] (Webinar) The 128th HGPI Seminar “Viewing Healthcare Disparities Through the Lens of Breast Cancer Treatment” (October 29, 2024)