Health and Global Policy Institute (HGPI) views proactive involvement from people with lived experience and citizens in the policy formulation process as a key theme for achieving “citizen-centered health policy,” the mission of ours. Over time, we have been engaging in various activities to encourage such involvement.

Since FY2021, we have invited experts specializing in health policymaking process and patient and public involvement (PPI), as well as patient/related party/citizen leaders with extensive experience in participating in health policymaking process, to the Advisory Board and has held a series of discussions to promote meaningful involvement of people with lived experience and citizens in health policymaking process.

In FY2023, based on these discussions, HGPI has compiled the “Guidance on PPI in Health Policymaking” and the policy recommendations “Promoting PPI in Policymaking Process,” to summarize the efforts required of patients, related parties, citizens, and government respectively, and the requirements for patients, related parties, and citizens to participate in health policymaking process.

This expert meeting aims to promote meaningful involvement in policymaking process at all regions in Japan. To achieve the goal, we invite experts, mainly from our Advisory Board, to discuss the democratic process of health policymaking and the actions necessary to promote the meaningful involvement of people with lived experience and citizens in health policymaking.

*Please note that this seminar is available in Japanese only. An English report of this event will be published in due course.

[Event Overview]

• Date & Time: Friday, July 26, 2024, 18:30-19:45 JST
• Format: Online (Zoom Webinar)
• Language: Japanese
• Participation Fee: Free

 

[Program] (Title omitted, no particular order)

Opening Remarks and Event Overview

Ryoji Noritake (Chair, HGPI)
Takahiro Sakauchi (Manager, HGPI)

Keynote Lecture1 “Trends and Future Prospects in Patient and Public Involvement”

Kaori Muto (Professor, Department of Public Policy Studies, Institute of Medical Science, University of Tokyo)

Keynote Lecture2 ”Meaningful Involvement of People with Lived Experience and Citizens in Policymaking in Democracy”

Akira Morita (Representative Director, Next Generation Fundamental Policy Research Institute)

Round Table Discussion “Shaping the Future of Health Policy with People with Lived Experience and Citizens: Actions Needed to Promote Meaningful Involvement”

Panelists:
Kyoko Ama (Representative, Children and Healthcare Project; Fellow, HGPI)
Shinsuke Amano (Chair, The Japan Federation of Cancer Patient Groups; CEO, Group Nexus Japan)
Naohiro Egawa (Deputy Director, Division of Dementia Policy and Community-Based Long-Term Care Promotion, Health and Welfare Bureau for the Elderly, Ministry of Health, Labour and Welfare (MHLW))
Naomi Sakurai (President, Cancer Solutions Co., Ltd)
Takeshi Shukunobe (President and CEO, PPeCC)
Kazuyuki Suzuki (Senior Lead, Patient Engagement Group, Strategy & Execution, Novartis Pharma K.K.)
Yasuhiro Sensho (CEO, SENSHO-GUMI, Co., Ltd.; Former Director-General, MHLW)
Teppei Maeda (Lawyer, Maeda & Unosawa Law Offices; Representative, Medical Basic Act Community)
Ikuko Yamaguchi (Chief Director, Consumer Organization for Medicine and Law (COML))
Risa Yamazaki (Public Affairs Group, External Affairs Department, Chugai Pharmaceutical Co., LTD.)
　
Modelater:
Kai Shigeno (Senior Associate, HGPI)

Closing Remarks

TBD