[In the Media] Global Collaboration and Co-Creation Towards the Future of Rare Disease Policy and Beyond (Journal of Clinical and Experimental Medicine, March 7, 2026)
date : 3/19/2026
![[In the Media] Global Collaboration and Co-Creation Towards the Future of Rare Disease Policy and Beyond (Journal of Clinical and Experimental Medicine, March 7, 2026)](https://hgpi.org/en/wp-content/uploads/sites/2/lecture-media-361-top.png)
Ms. Yui Kohno, Manager at Health and Global Policy Institute (HGPI), contributed an article to the Journal of Clinical and Experimental Medicine (Igaku no Ayumi), Vol. 296, No. 10, featured in the special issue “Frontiers of Rare Genetic Conditions: Bridging Science and Society.”
In her article titled “Global Collaboration and Co-Creation Towards the Future of Rare Disease Policy and Beyond,” she examines global policy trends on intractable and rare diseases and discusses the significance of patient and public involvement, as well as key challenges ahead, from the perspective of a health policy think tank in Japan and the Asia-Pacific region.
Related Posts
-
2025-04-11
[Discussion Points] Intractable & Rare Diseases Project Discussion Paper “Intractable & Rare Diseases 2025: 10 Years After the Passing of the Intractable Diseases Act, Toward a Co-created Future” (March 28, 2025)
-
2025-04-30
[Event Report] The 130th HGPI Seminar “Marking a Decade of the Act on Medical Care for Patients With Intractable Diseases: Connecting Intractable Diseases and Society From the Perspective of a Media Professional and Family Member” (January 28, 2025)
-
2024-08-23
[Event Report] Intractable Disease Day Symposium: Future Measures for Intractable Diseases from the Perspectives of Patients and Citizens (May, 23 2024)
-
2026-01-26
[HGPI Policy Column] (No.68) – From the Intractable and Rare Diseases Project "Part 2 – Making Intractable and Rare Diseases a Priority Issue for the International Community: The WHA Resolution’s Vision for a Global Action Plan and Japan’s Role"
Top Research & Recommendations Posts
- [Research Report] Energy Conservation and Greenhouse Gas Emissions Reduction in Healthcare Facilities: Case Studies from New Construction and Facility Renewal (March 16, 2026)
- [Public Comment Submission] “The 7th Science, Technology and Innovation Basic Plan” (Draft) (February 19, 2026)
- [Research Report] The 2026 Public Opinion Survey on Healthcare in Japan (February 13, 2026)
- [Research Report] Perceptions, Knowledge, Actions and Perspectives of Healthcare Organizations in Japan in Relation to Climate Change and Health: A Cross-Sectional Study (November 13, 2025)
- [Research Report] The 2025 Public Opinion Survey on Healthcare in Japan (March 17, 2025)
- [Policy Recommendations] Reshaping Japan’s Immunization Policy for Life Course Coverage and Vaccine Equity: Challenges and Prospects for an Era of Prevention and Health Promotion (April 25, 2025)
- [Policy Recommendations] Mental Health Project: Recommendations on Three Issues in the Area of Mental Health (July 4, 2025)
- [Research Report] The 2023 Public Opinion Survey on Satisfaction in Healthcare in Japan and Healthcare Applications of Generative AI (January 11, 2024)
- [Policy Recommendations] Developing a National Health and Climate Strategy for Japan (June 26, 2024)
- [Research Report] The Public Opinion Survey on Child-Rearing in Modern Japan (Final Report) (March 4, 2022)
Featured Posts
-
2026-02-13
[Research Report] The 2026 Public Opinion Survey on Healthcare in Japan (February 13, 2026)
![[Research Report] The 2026 Public Opinion Survey on Healthcare in Japan (February 13, 2026)](https://hgpi.org/en/wp-content/uploads/sites/2/HGPI_The2026PublicOpinionSurveyOnHealthcareInJapan_20260213.jpg)
-
2026-03-03
[Registration Open] Online Seminar “Implementing Chronic Kidney Disease (CKD) Measures into Society: Towards a Data-Driven Health System” (April 21, 2026)
![[Registration Open] Online Seminar “Implementing Chronic Kidney Disease (CKD) Measures into Society: Towards a Data-Driven Health System” (April 21, 2026)](https://hgpi.org/en/wp-content/uploads/sites/2/HGPI_20260421_CKDonlineseminar-.png)
-
2026-03-23
[Registration Open] Application for the Health Policy Academy the 15th Session (Session Starts July 2026)
![[Registration Open] Application for the Health Policy Academy the 15th Session (Session Starts July 2026)](https://hgpi.org/en/wp-content/uploads/sites/2/HGPI_20260319_HPA15.jpg)
-
2026-04-01
[Registration Open] (Webinar) The 143rd HGPI Seminar “20 Years Since the Enactment of the Cancer Control Act: Reflecting on the Past and Envisioning the Next 20 Years” (April 28, 2026)
![[Registration Open] (Webinar) The 143rd HGPI Seminar “20 Years Since the Enactment of the Cancer Control Act: Reflecting on the Past and Envisioning the Next 20 Years” (April 28, 2026)](https://hgpi.org/en/wp-content/uploads/sites/2/HGPI_20260428_143rd-HGPI-Seminar.png)
