[Policy Recommendations] Building a Research and Development System Together With People Living with Dementia and Their Families to Drive Parallel Progress in Creating an Inclusive Society and Advancing R&D (April 25, 2023)
date : 4/25/2023
Tags: Dementia
Health and Global Policy Institute (HGPI) presented the policy recommendations entitled “Building a Research and Development System Together With People Living with Dementia and Their Families to Drive Parallel Progress in Creating an Inclusive Society and Advancing R&D.” The recommendations were complied by HGPI independently based on discussions of Roundtable Discussions and Symposium we held this year. For details, please see the PDFs linked below.
■Overview of Policy Recommendations ”Building a Research and Development System Together With People Living with Dementia and Their Families to Drive Parallel Progress in Creating an Inclusive Society and Advancing R&D”
Recommendations:
To achieve innovations in dementia that are based on the needs of people living with dementia, their families, and citizens, a collaborative platform centered on civil society should be established.
Anticipated features for the collaborative platform:
- Features that promote Patient and Public Involvement (PPI) and PPI-centered development
- Features that provide suitable support and easy access to information regarding research programs to all participants
- “Participant first” and “Family first” features that provide access to care through research program participation
- Features that enable two-way feedback among participants and researchers after research programs are concluded and that create communities that last
- Features that allow opinions on and evaluations of innovations that have been introduced to be accumulated and utilized to contribute to further improvements
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