[Event Report] HGPI Special Seminar “How can patients and the public participate meaningfully in health policymaking?” (May 23, 2023)
date : 7/28/2023
This special HGPI seminar was hosted by Health and Global Policy Institute and The Health Policy Partnership, a UK-based health policy think-tank.
Citizen participation in healthcare policymaking can increase trust among patients and the public, help build capacity among the people participating and improve the quality and appropriateness of decision-making. As citizen involvement in policymaking is becoming more common, we need to ensure this participation is genuine and valued as much as other kinds of evidence.
The webinar provided an opportunity to learn about what is needed to ensure patients and the public can feed into policy design in a meaningful way. Patient advocates and experts in policy discussed the importance of involving patients and the public in health policymaking, lessons learnt from successful engagement in Japan and Europe, and the opportunities for participatory policy development offered by the digitisation of healthcare.
We were joined by patient advocates and policy experts, Shinsuke Amano (Group Nexus Japan), Penilla Gunther (FOKUS Patient) and Ryoji Noritake (HGPI). The webinar featured live two-way translation between Japanese and English.
The recording is available at the HPP website for English, and here for Japanese version.
*Due to technical reasons, there may be some unclear or hard-to-understand parts in the video and audio. We appreciate your understanding in this matter.
[Overview]
- Speakers:
Jody Tate (Director of Research, The Health Policy Partnership)
Penilla Gunther (Founder/Program Director, FOKUS Patient)
Ryoji Noritake (CEO/Board Member, HGPI)
Shinsuke Amano (Executive Director, Japan Federation of Cancer Patient Groups/Executive Director, Group Nexus Japan)
- Date & Time: Tuesday, May 23, 2023; 18:00-18:45 JST
- Format: Online (Zoom Webinar)
- Languages: English and Japanese (with simultaneous interpretation)
- Participation fee: Free
- Hosted by: Health and Global Policy Institute (HGPI)/ The Health Policy Partnership
Top Research & Recommendations Posts
- [Research Report] Energy Conservation and Greenhouse Gas Emissions Reduction in Healthcare Facilities: Case Studies from New Construction and Facility Renewal (March 16, 2026)
- [Research Report] Perceptions, Knowledge, Actions and Perspectives of Healthcare Organizations in Japan in Relation to Climate Change and Health: A Cross-Sectional Study (November 13, 2025)
- [Public Comment Submission] “The 7th Science, Technology and Innovation Basic Plan” (Draft) (February 19, 2026)
- [Research Report] The 2025 Public Opinion Survey on Healthcare in Japan (March 17, 2025)
- [Research Report] The 2026 Public Opinion Survey on Healthcare in Japan (February 13, 2026)
- [Policy Recommendations] Policy Recommendations in the Field of Blood Disorders “Building a Healthcare Ecosystem Centered on Patients and Those Affected” (April 13, 2026)
- [Policy Recommendations] Developing a National Health and Climate Strategy for Japan (June 26, 2024)
- [Research Report] AMR Policy Update #2: WHO’s First Report on Fungal Infection—Bridging the Gap Between Clinical Practice and R&D
- [Policy Recommendations] Dementia Project “The Future of Dementia Policy Surrounding Families and Others Who Care for People with Dementia” (April 27, 2026)
- [Policy Recommendations] Mental Health Project: Recommendations on Three Issues in the Area of Mental Health (July 4, 2025)



